Thursday, February 10, 2011
STS and chickens
I spent a long time walking around the barn, gathering up the viable eggs, feeding the chickens that were still alive, and collecting the chicks and chickens that had died.
As I said, this is a recurring dream. I have had it during the years I was working on Poultry Science, Chicken Culture, and I have usually understood it as a signal that I was neglecting my writing, or another message from deep in my own unconscious (and like all such messages, overdetermined.)
What happens if I follow my own advice, though, and consider that dream as an augury giving me early warning of the endangered state of interdisciplinary programs like our own STS program. I've learned through keeping chickens that they do indeed come home to roost. And yet what if the roost itself, and the building that shelters it and the chickens roosting there, have been abandoned?
Tuesday, November 23, 2010
STS and chickens
I've just spent five years writing a book on chickens while being a full time faculty member. My book is due out from Rutgers Press this month, and I'm feeling nostalgic for those years in which I shared many of the experiences Jeanine writes about: the pleasures of sitting with the chickens in the morning sun, the challenge of an egg-bound hen, the novice's notion that you have to put the birds back in the hen house at night. (Mine were free to go wherever they wanted during the day--on the lawn, in the fields, in the woods--but after the first night when I tried to shoo them into the henhouse at dusk wielding a broom, I soon learned that they came home all by themselves, lining up in their preferred order on the roosts.) In fact, I enjoyed sitting home with my birds so much, I was really reluctant to step in as the Acting Director of our STS Program. I'd already done administration--been Associate Provost at another university--and was sure I would hate every moment of my return to "the dark side." Instead, I have discovered that I am thoroughly enjoying this brief stint back in the administrative trenches, for much the same set of reasons that I hugely enjoyed writing my book on chickens. Our STS program includes a collection of young faculty members whose interests are as varied as the plumage of my birds: disability studies, food security, sustainable agriculture, embryology, bioethics, Alzheimer's and other cognitive dementias, the history of military technology, climate change, and more. They are united by their conviction that the relationship between science, technology, medicine and society matters, that it shapes our human societies just as we, in turn, have shaped the tools and technologies that conform us as users. These diverse commitments and engagements were also (I am now realizing) what drew me to writing my book on chickens, which I organized as an ABC book so that in each chapter I could explore another aspect of the scientific and cultural interrelationships between human beings and chickens. From Augury, Biology and Culture, to Gender, Hybridity, and Inauguration, I used my focus on chickens to draw me out into the world. And that's just what I am enjoying now about this brief year of directing our STS Program: the engagement with the world in all its complexities that the program's faculty and students share.
So thanks to Jeanine Carr for suggesting another way that chickens help put life--administrative life, this time--in perspective.
Monday, November 22, 2010
animals and ethics
Kaminer's position on this curious new transaction--selecting both the bird for your Thanksgiving dinner and the butcher who will teach you to kill it--is wryly affirmative. She sees it as "all part of the broader cultural effort to escape the climate-controlled, linoleum-lined artificiality of supermarket shopping, in which meat magically appears all ready for your oven and animals are characters in children’s storybooks." Her point makes good sense to me, having spent some time rereading childrens' storybooks when I was writing Poultry Science, Chicken Culture--from the bird's eye perspective on the natural year in Elmer Boyd Smith's exquisitely illustrated tale Chicken World, to the gender-charged Little Red Hen tales of my mother's childhood and my own, and finally to a different kind of globalized vision with disturbingly neoliberal after-effects, in One Hen. In fact, I'd push Kaminer a bit on where the responsibility ends. Just as no bread shows up in the oven without someone to pick the wheat, thresh the grain, lug the grain to the miller, knead the dough, and form the loaves (Little Red Hen taught us that), no turkey arrives on the Thanksgiving table without someone doing the work not just of killing it (which Kaminer did) but of scalding, plucking, and dressing the bird.
We learned this first-hand the day after I finished my book. I was gazing out of the window just in time to see a hawk swoop down from the big tree and kill my Buff Orpington hen. (Yes, she was a little red hen.) I ran out yelling, and found the hawk just sitting there, claws into feathers, staring at me sideways until I ran straight up and forced it to flap up and away. The hen, her neck broken, was floppy, soft, and still warm. (In fact, since chickens have a body temperature of 110 degrees, I mean very warm.)
Now that the hawk had done the deed, it felt wrong just to throw the body of our red hen into the garbage. Stranger in a Strange Land, a book I've never much liked, came back to me: I wanted to grock her fullness (or at least that is the silly sounding phrase I remember from the book all those years ago--kind of a paying tribute by incorporation to a being whose life had worth and import).
So, we decided we would try to prepare her for that ceremonial meal. Having watched our own poultry processor Eli Reiff do the same cone-and-knife procedure that Kaminer learned with her butcher, we knew that we should cut the hen's head off and hold her upside down until the blood drained out. So we did that: Gowen did the cutting, and we tied her legs with twine to the railing of our front deck so that the blood could drain into a bucket below. And then we put a very big pot of water on the stove to boil, while we reread the section on butchering chickens in our Country Guide. Once the water comes to a boil, and hits the right line on the thermometer, you dunk the bird in (holding her feet) and bob her up and down for about 60 seconds to loosen the feathers. So we did that, and then put her on the floor (which we'd covered with a sheet laid down over some garbage bags to keep water off the wood boards). The plucking itself was surprisingly easy; the feathers came off almost as if we were zipping her out of a chicken suit. The 'dressing'--gutting her and pulling out the inner organs, and cutting off the head and feet--came next, and I found that much harder. As he pulled the innards out, we were both shocked when out came a cluster of eggs, from tiny yellow balls to full-sized eggs with shells already on them. I stood near by, but protected by the camera lens, and documented the event while Gowen accomplished it. Result? After the visual shock of the brightly colored innards, the very familiar image of a cleaned and dressed chicken all ready for the freezer.
We stewed the hen, with morels and red wine and onions, and the delicious dinner felt very meaningful, even (I thought at that time) ethical. Yet I return to that now by way of an essay I have been reading written one of my personal heroes--the biologist and epigeneticist C.W. Waddington--in his book The Ethical Animal. Waddington's approach to ethics has a strongly biological basis, yet not in the reductive sense of so much contemporary sociobiology. Instead, he gives us biology in terms that resemble Donna Haraway's essay "Situated Knowledges: The Privilege of Partial Perspective."
"Like all other products of evolution, [the human intellect] has been moulded [sic.] by the necessity to fit in with--or rather, to put it more actively, to cope with--the rest of the natural world. Its function is not to produce a God-like vision of the human situation seen from some stand-point above and outside the turmoil of actual life. The intellect is an instrument forged--perhaps by a rather rough and ready village blacksmith, let us confess--for the specific purpose of coming to terms with things. The situation with which we find ourselves confronted, a world of social-economic revolutions, of wars, of mass scale technology, is the basic raw material by which the intellect is challenged. To discuss subjects such as ethical theory without specific reference to such problems is to run away to an ivory tower. [ . . . ] What is demanded of each generation is a theory of ethics which is neither a mere rationalization of prejudices, nor a philosophical discourse so abstract as to be irrelevant to the practical problems with which mankind is faced at that time." (my italics, Waddington, 1960)
The intellect as a tool, and ethics as a situated theory, rather than a God-like vision from some abstract and unsituated standpoint: this sounds to me like a remarkable anticipation of Haraway's own critique of both standpoint feminism and positivist science, with its "God's eye view from nowhere." Strikingly, at the end of the introduction to The Ethical Animal, Waddington actually suggests that the very word "ethical" might better be replaced with the word "wisdom" which, he says, "remains . . . an aspiration and not an achievement."
Which brings me back to Kaminer's story in the Times. The rueful tone of her conclusion suggests that she has had a brush not with the clarity of ethics, but with something more like Waddington's notion of wisdom. "For those carnivores who are truly at one with the world, killing your own meat might feel almost like a spiritual act, a way to participate in every step of the life cycle. That’s not how it went for me. I found it upsetting and, on some very basic level, gross."
Despite Kaminer's fantasy that an unconflicted wholeness is available to some lucky carnivores, we know that very few people--meat eaters or vegetarians--attain the spiritual elevation of being "truly at one with the world." In its complexity and imperfection, her troubling experience with butchering her Thanksgiving turkey, like our response to the hawk butchery of our little red hen, situates us solidly in the upsetting, even gross, "turmoil of actual life" (to borrow a phrase from Waddington.) To my way of thinking, that's a position well worth our collective thanksgiving.
Thursday, March 26, 2009
spring? spring?
Saturday, November 8, 2008
Inauguration
HOWEVER: I know now that I need to contribute one final chapter to my book, Auguries, Biology, Culture: Notes toward an ABC of Chickens. The chapters that exist so far are: "Auguries", "Biology", "Culture", "Disability", "Epidemic", "Fellow-Feeling", "Gender", and "Hybridity", and I'd been planning to end there, with just a final chapter, "The Zen of the Hen," to get the concluding Z in there. I still think I will write that chapter, which will be on "just sitting" among other things, but first I need to write one final chapter, "Inauguration." Why, you might ask, other than the fact that like everyone else in the world (it sometimes seems) I've been obsessed with the campaign to elect OBAMA, and am now in that zombie-like-zone after the election that the Onion satirized so well?
ALL ALONG I've been thinking that this campaign has seemed to have endowed chickens with more than the usual amount of political significance. I've seen stories on Jeremiah Wright titled "Obama's Chickens Come Home To Roost," noticed the sudden proliferation of "Why did the chickens cross the road?" jokes that featured John McCain and Sarah Palin, been appalled by those "OBama Bucks" created by the racist southern California volunteer (was she a staffer of the RNC or merely a local party stalwart) that featured fried chicken and watermelon on a "food stamp" dollar with Obama's picture on it. But this morning when I checked my RSS feed I found three stories that have pushed me over the edge, and forced me to contemplate yet one final chapter.
FIRST, THERE WAS THIS STORY filed on "Political Punch," the blog of ABC News Senior National Correspondent Jake Tapper, on October 31, 2008, at 9:49 pm.
(See http://blogs.abcnews.com/politiclpunch/2008/10/house-gop-leade.html ) Pulled by Tapper from the student newspaper of Miami University of Ohio (bless their neophytic journalistic chops!) was the report that House Minority Leader John Boehner, R-Ohio had called Senator Obama "chickenshit" for voting "present" on house votes. As Boehner put it, "In Congress, we have a red button, a green button and a yellow button, alright? . . . Green means 'yes,' red means 'no,' and yellow means you're a chicken****. And the last thing we need in the White House, in the oval office, behind that big desk, is some chicken who wants to push this yellow button." As a student present in the audience, Sophomore Laura Heins, put it, "To hear this man call this man a chickens*** in front of an audience was absolutely appalling. . . . . It angered me that he would go that low in order to promote his own candidate."
NOT ALL READERS of the blog found the "chickens***" label appalling, however. As one irate respondent put it, "Obama is a chicken and it is about time that more and more of his colleagues called him out on not voting as a State Senator or a US Senator . . . . What is he going to do as Commander-in-Chief? Play chicken . . . when the going gets tough?????" And as another reader put it, "Obama is a chicken. He is like the wimpy bully that pushes people around as long as his buddies are standing behind him. His campaign is built on lies and intimidation." A third reader returned to a familiar folk saying when he concluded, "Our chickens are coming to roost. Mr. Wright has called Mr. Obama a liar. Mr. Obama in return disowns Mr. Wright only after Mr. Wright suggested that Mr. Obama is a liar. Mr. Obama is a serial liar." And a final reader, "Clintonites for McCain," cautioned, "Chicken is a big word. My only concern about Obama is that he seems to stand (I am not saying hangs out with) a lot of punks--like Rev. Wright, Ayers, Kahlidi."
TO CALL SOMEONE A CHICKEN is, as that reader points out, "a big word." The term has been an insult since Diogenes responded with the gift of a plucked chicken to Plato's definition of man as a "featherless biped." The wordless gift said it all: human dignity could not support being compared to a chicken. It was crucial to differentiate between person and poultry. Thus rebuked, Plato added to his definition the additional stipulation: "Having broad nails." (The rejoinder is almost a gag line, for the insignificance of the stipulated detail suggests that in every other way the two life forms are as close as twins . . . )
BUT NOTE THAT Obama isn't just called a chicken, and thus by implication accused of cowardice and avoidance. He is also linked explicitly to the color yellow, which extends the connection to cowardice while broadening this to a racial slur against all people of color. (Suzanne Langer has a great rereading of Gilman's "The Yellow Wallpaper" that makes this point, for anyone who is sceptical.) And such racism explains the image of Obama as a wimp who rules by intimidation, the fear that the "chickens" will "come to roost," revealing Obama's buddies to be not only Jeremiah Wright, but also William Ayers and Rashid Kahlidi (seemingly "bullies" for their advocacy of the rights of people of color at home and abroad). Finally, Obama is described as chickenshit, an excremental curse that compactly conveys not only abjection, but powerlessness, insignificance, impotence, and even backwater rurality.
AS I WAS PONDERING THESE POSTS, I FOUND THE FOLLOWING, from "John Kelly's Commons," a blog at WashingtonPost.com:
"The upcoming inauguration of Barack Obama allows us to have a quick lesson in Roman history. Though its precise etymology is disputed, "inauguration" is generally believed to come from the Latin for "directing the birds."
Birds were very important to the Romans for foretelling the future and discerning the moods of the gods: the way birds flew, what they ate, how they ate. (It was considered a good sign if food dropped from the beaks of the sacred chickens as they were fed. Yes, there were sacred chickens.) You still might say, after some mishap, "This doesn't augur well." Or, you might say that if you were, like me, kind of pretentious. To inaugurate means to prophesy about the future, something the Sunday morning pundits love doing.
Frankly, I know more about Roman augury than I do about American inaugurations. I think that's because inaugurations aren't really the province of the non-political native Washingtonian. They're for the party faithful, the monied supporter, the hopeful office-seeker.
Or are they? The balls might be tough to get into but anyone can watch the inaugural parade, right? Won't this particular inauguration draw all sorts of interest among natives and outlanders alike? [ . . . ] I haven't decided yet what I'm doing. I'll keep my eyes on the sky--and on the sacred chickens. What about you?"
KELLY'S FINAL COMMENT SAYS IT ALL. We still need to keep our eyes on the sky, and on the sacred chickens, in order to figure out what the future augurs. Or, as I argue in the first chapter of my book, "Auguries," the kinds of knowledge we can get from watching chickens are still a potent part of our cultural imagination. They've just expanded their prognostication potential, to include the realms of biology, culture, disability, medicine, economics, and yes, even politics.
CHICKENS CAN EVEN ILLUMINATE the strategies of Obama's transition team, or so this final article I found on my RSS feed suggested to me. Chickenmuseum.com posted this great advice for "Introducing the New Birds on the Block."
"One very good strategy is to let them see each other without having any physical contact. How? If you have a run . . . you could put your old chickens there and then put a border (chicken wire) between the run and the coop. Put your new chickens inside the coop. This way, they are able to see each other minus the harm. Be sure that both parties have access to sufficient food and water. You can do this for about a week.
"As transition day comes, . . . you can now 'join' them in one arrea. You can transfer the newcomers to the resident flock's territory during the night when all the birds are sleeping. Upon waking up, the old chickens will notice the new ones and they will . . . try to start a fight but will not because they are too groggy to initiate it.
"Distraction techniques are always effective in some way. This can alleviate tactics of war coming from the resident chickens. . . .
"Some of the distracting techniques are:
a. Cabbage heads can do the trick. By hanging a piece of whole cabbage just above their head, chickens will reach it until everything is finished. That is, if they don't get exhausted by jumping to it and reaching it.
b. Make the pursuit an obstacle for the pursuing party. . . .
c. Let them run around at a wider and freer range. The oldies will be so thrilled . . . they wouldn't even notice that there are newcomers roaming around."
Friday, April 4, 2008
Chick Sourcing and Hen Schlepping
We live in Boalsburg (small world) so we have gotten chicks from the poultry auction at Belleville. It happens on Wednesday mornings: you show up around 11:00 at the Belleville market, and look for the poultry building (around behind the livestock barn). The auction will start around noon, if I remember correctly. They auction off a wide range of birds there: not just chickens, but guinea fowl, ducks, geese, rabbits and guinea pigs (honorary birds because of their size and edibility), peacocks, and I have even seen a beautiful macaw. As far as chicks go, there are three kinds usually available: large numbers of standard hybrid meat birds, bantam hen and chick combinations, standard size farmyard hens of no particular type with a clutch of chicks, and (very occasionally) pullets. I was once lucky enough to find three beautiful Buff Wyandotte pullets that had been hand raised by the 4H daughter of the cashier at the auction house. They were wonderful: tame, friendly, smart, and they laid gorgeous brown eggs. Another time I found a pair of Silkies, that went on to lay beautifully, but not at my house because my other roosters had it in for the Silkie rooster, so I had to give them away to a more peaceful home.
They also sell roosters there, and beware, if you see a box of chicks that aren't hybrids, they will often be the result of a chick-sexing wizard who has figured out which the males are in a clutch of chicks and is off-loading them before the pose a problem. Too bad, but much better than just dumping the chicks in the landfill, which is what apparently many of the industrial producers do.
At least those roosters have the chance of life, and ideally not as fighting cocks (though I know some of them do go for that.)
Now, on to a very late report on my own chickens. Last spring, we bought fifty White Wyandotte female chicks from Murray McMurray: our second year of raising our own chickens and staying at least to some extent off the grid. (Or at least knowing exactly what kind of a life our birds had: roaming outside, eating grass and bugs as well as scratch corn, and learning about life.) There is a lot I could say about this experience--for example, the poignant discovery that incubator-raised chicks who come en masse to your brooder have no clue how to deal with the basics of life. At the same time in my chicken yard I had two bantam-hen-and-chick families, and it was actually painful to see the difference in the chicks who had mothers, and those who were raised in the circle of the corrugated cardboard brooder. I did my best--warm lights, clean shavings, food and water always fresh--but they were no more educated into the world than puppies are who are raised in a puppy mill. . . .
In any case, fast forward to this spring. Most of those chickens are in our freezer, though we have eaten a fair number, as coq au vin, or roasted, or stewed. They lived for 18-19 weeks, which is longer than standard, and it really hurt to take them to our Butcher, Eli Reiff. But as I have already written, he is a gem: kind, careful, quiet, and very fast. Only two of the White Wyandottes remain--there was a third, but a raccoon got into the hen house and killed one of them. And that's when the strange new era started for our last pair of hens.
The murderous raccoon had done the killing, but then had not left the hen house. Instead, it curled up in one of the nest boxes and fell asleep. This scared the remaining chickens so badly that when my husband opened the house in the morning they came tearing out--leaving the sluggish sleepy raccoon behind them.
Now, they won't spend any time in the hen house voluntarily. (Can you blame them? I can't!) Instead, they wander around our garden, fields, woods and driveway, happily eating whatever they find and scratching for bugs with absorption. When it begins to get dark, they head into the garage, where we find them settled in for the night on a bookcase. Because we don't trust the garage to be predator-free, we have to pick them up and carry them out to the chicken house, which we carefully check for raccoons etc., and then put them on their perch.
This has become a nightly ritual. And since I'm in New York City most of the time, writing my book, that means that when my husband gets back from a day of seeing clients (he is a psychotherapist), he has to go into the garage, pick up the two sleepy chickens (one under each arm) and deposit them in the chicken house for the night.
And to add insult to injury, we can't find where they are laying their eggs now!
Just a report from the trenches.
Tuesday, October 30, 2007
Urban Chickens in London
Wednesday, October 10, 2007
Autumn in the chicken yard

I've been collecting news about chickens thanks to various RSS feeds, but now that I'm back with my own chickens, I'd rather write about what's happening right here in my chicken pen.
The White Wyandottes are much bigger than they were the last time I saw them (about two weeks ago). They also seem to be in a moult, no doubt a result of the very unseasonably hot weather. When they fluff up their feathers, which they do after dust-bathing to get the mites off, their small inside feathers drift to the ground. Yesterday one hen shook herself and a small feather fell into the water pan, where it sailed about like a fairy boat, until the same hen stopped by later for a drink and gobbled the feather right up. People are always so appalled to think that hens will eat anything, but here's an instance. (And of their cannibalistic tendency, too. . .)
The four bantam chickens have now come into maturity, and they are three lovely roosters, with black bodies and golden brown mantles and tails, and one modest golden little hen. The emotionally-tinged language just seems to fit them: the roosters are all display, the hen all inobtrusive speed as she gleans our garden. One of the roosters has started crowing--the lovely one with the black spangled feather-headdress spiking out from his red comb--and it's been so funny to listen to him try to find his particular song. At first it was just like a teenage boy whose voice was breaking, but now he has his riff down, with its distinctive quaver and semi slide down several notes toward the end. I'll see if I can listen and find a way to annotate it. The other day, he was practicing so loudly that he woke me up, about 5:30. I went outside, sure that he was in the garden shed annex to our hen-house because it sounded so loud I thought it was echoing. But no sign of him there. . . Instead, he startled me by flying out of a tree behind our garage just as I was passing beneath it. I looked up, and the other two roosters and the hen were all up there, teetering on a thin maple branch. I'm trying to get them to come into the garden shed so that once winter comes they can find water and food there, but so far they're reluctant to get anywhere near the other chickens (with their large turf-protective Barred Rock-Bantam Crossrooster). So the chicken flock stays in the hen house, to be let out in the morning & closed in at night, while the four bantams range at their pleasure across our lawn, fields, and even garden.
They do visit the chicken coop for food and water occasionally, though. I was sitting out there the other morning, communing with the chickens in my own form of meditation, when the four bantams came in to drink from the red dog bowl of fresh water I'd put down. I'd just seen The 3:10 to Yuma, and it reminded me of the scene in which Ben Wade's gang come into town. The White Wyandottes clucked and clustered, but they along with all of the rest of the 'town' chickens stayed away, while the little Bantam rooster had a dust-up first with the Big Barred Rock/Bantam, and then the tough mama Barred Rock who has seniority in the chicken-yard. After the gang of Bantams, so obviously built for speed and independence, took what they needed from the chicken yard, they cleared right out.
In fact, the chicken community reminds me of what I missed in the film: strong older women. It's not to fill a category that I want this, but because the chicken community shows so clearly that the foundation of a community requires not only male elders and legislators but fearless older women as well. I think of how our old Barred Rock hen patrols the food and water, keeping chipmunks away, and of how the elderly beared Bantam mama who has chosen to stay in the chicken yard vehemently keeps the other intruder Bantams away from food, water, even scattered vegetables that I bring in from the garden. There is a tight sense of belonging each group has, as well as a clear sense of the other's outsider status. The only thing that challenges this is, predictably, the exogamy mandate. Though of course the chickens don't know it as such--they just manifest it as the little Bantam tries to mate not with his mother in the alien foursome, but with the much larger White Wyandottes from the other cohort. However, he can't accomplish that, because she really is a good four inches taller than he. So in the end he turns to his indignant, squawking mama. (And so, of course, seniority only goes so far in the chicken-yard.)
I think these chickens are about three to four weeks shy of their slaughter date, a phrase I somehow hesitate to write here. Why: because the admission that I will kill them puts me in a camp that to many readers may make me the outsider? Not a vegetarian. Not dedicated to the life-long welfare of my hens and roosters. Not the wonderful chicken rescuer I read about in a Minnesota newspaper. . .
I'm interested in this: somehow it has felt important to me to work out a relationship with my chickens that acknowledges the fact that they're going to feed us. They've been well cared for, with affection and good food, water and roaming room, and pretty soon it'll be their time to go. I'll be taking them to Eli, the Mennonite Butcher in the next valley who does the butchering for all of the small farmers in the area. He's careful, gentle, quick, and the most interesting talker I've come across in a long time. When I first met him I decided that he was actually a life form in need of protection, since the small-scale butchers have pretty well vanished from central Pennsylvania. I stand with the chickens as he butchers them, having brought them to him following his careful instructions: no stress, crates covered with a blanket if the air is cold or the wind is harsh. But I'm still wondering how I'll feel after knowing these birds since May 31: we've planned on them as our dinner for the winter & spring, but I'm sorely tempted to keep at least one hen out, as a layer and friend. There's the curious one with the dark red comb and wattles . . .
Mortality: my chickens face it as my friends are facing it, and my mother (who's just fallen, and is increasingly frail), and I all face it. Autumn brings it all right out in the open: the warm, soft, mellow approach to the killing frost.
Friday, September 21, 2007
exhaustion
But until I get to it, here's one tidbit from the talk I've just finished:
I have been talking about medicine here, but let me push on that category a bit As Howard Brody has pointed out, the challenges posed by feminism and disability studies call on us to redraw the boundaries of medicine, to realize that issues of gender, race, and ability are crucial in our framing of medical issues. We’ve discussed race and gender, but it’s crucial to extend our understanding of medicine to encompass disability as well. Scholars distinguish three models for conceptualizing disability: the moral model, which sees disability as the result of a moral or spiritual failing that triggers stigma; the medical model, which understands disability as the result of an illness or injury that it is medicine’s task to cure or ameliorate, and that triggers pity; and the social model, which holds that a physical or mental impairment only becomes a disability when society refuses to accommodate it, and that triggers self-actualization.
Though disability studies scholars consider these modes roughly chronological, earlier perspectives on experience can persist even within later ones, imperceptibly shaping what can be thought, as philosopher of medicine and microbiologist Ludwik Fleck demonstrated in his brilliant study of syphilis.[i] So, in these comic books, the moral model of disability (with its stigmatization and sense of moral failing) persists even into the medical model, with its attention to adherence to the doctor’s regime for managing chronic illness.
[. . . ]
What have we learned about communicating medical information from the comparison of these four comics instructing children in diabetes management? We have learned, first, that we need to consider intersectionality when we do patient education, building attention to gender, race, ethnicity, and ability into every text we create. Second, we shouldn’t actually be writing the texts in the first place; the patients should write them, speaking for themselves about the challenges they are facing first hand. Third, and finally, we must understand that realistic, mimetic representation is not our only option. Popular genres like fantasy and science fiction, and popular media like comics and hypertext, may even be more suitable, if they leave open spaces for counter voices. So one more application for Butler's important strategy of performativity: the act of holding space open for the performance of different roles, voices, identities and images, whether as parody or in earnest, is a politically effective way of re-imagining health care.
- [i] Ludwik Fleck, Genesis and Development of a Scientific Fact. [1935] Chicago: University of Chicago Press, 1979.
Monday, September 17, 2007
First I saw the stunningly awful "Removable Parts" with A. and S. The evening was appalling, excruciating, and ultimately (thankfully) fun. But the fun came only at the very end, during dinner, and even then was laced with frustration.
It wasn't fun to make our way through the remote hallways to the locked elevator leading to the impossibly steep ramp into the theater, where no acceptable spaces for wheelchairs awaited, so that S. and A. had to park themselves right in the front of the house, just to one side of the first row, at an uncomfortable position raised about a foot or so above the rest of the seats behind them. And it wasn't fun to watch the two performers--the singer and pianist--respond with discomfort to our stark presence right in front of them, as they performed a series of appalling song-and-dance routines about a psychological or psychiatric disorder resulting in self-mutilation that they persisted in characterizing as something other than a disability. It certainly wasn't fun to sit furious in the first row during the post-performance talk-back while the four members of cast and crew (all white and able, as far as I could tell) made the distinction between disability (which they viewed as certainly worthy of pity) and BIID, which was worthy of scorn, merely crazy and absurd. No acceptable choice, the one between pity and scorn! And while it was fun to take notes during the performance, in the excellently lit first row, getting many of the most disturbing lines from the performance close to verbatim to their evident discomfort, it was not fun trying to educate people so profoundly unaware of the multiple ways they were being offensive and cruel.
And no fun at all was the experience I had when the talk-back concluded. The audience had filed out. As A. , S. and I prepared to leave as well, the singer-songwriter-author of this dismal spectacle reached out and touched me on the arm, thanking me. He distinctly did not do the same to S. and A. It felt like a mark of complicity: you and I, it seemed to suggest, aren't like those two people in wheelchairs. We're both normal, and on the same side. I felt tainted and offended, for myself and for A. and S. Yet, tell the truth. During the performance in addition to being angry and appalled, I had also felt sympathy for the writer and pianist. I imagined their discomfort with us in the front row. I pitied them during the talkback, as we (even so gently) took issue with their ideas, and pointed out ways in which they should rethink the performance. Those emotions of pity and sympathy mark my liminal position in the whole encounter. Visibly able (though smarting inside at their scorn for those who struggle with psychiatric issues, as I have and do, and angry at their visible discomfort in the presence of my friends) I still experienced a kind of 'ability privilege' akin to white privilege. Simply by being seemingly intact, I earned the performer's sympathetic touch, acknowledging our kinship. A kinship I don't want, and don't feel.
Our dinner was much more fun, even though it didn't start out that way. Here we were at one of the four most accessible restaurants in NYC according to the NY Times (or could it have been one of the minimally accessible restaurants with the best food?) but the ramp had to be fetched (which took time) and required bracing before S. and A. could maneuver their chairs up it (with some frightening backslides and skids). Our dinner conversation was an uproarious relief as we trashed the performance and talk back, and the food was ample and delicious. But at the end of the meal there was still the difficulty of negotiating the trip to the bathroom next door (the small indignity of having to announce one's need to use the toilet, one of many such smaller and larger indignities) and then the trip up the broken pavement and inadequately curb-cut intersections of the West Village.
Tonight I went with M. and B. to see The 3:10 to Yuma, and found still more DS issues worth mulling over. The father in the film is a gimp--wounded in the Civil War where he fought for the North--and his missing leg is a plot point throughout the film. Shown first as cause for his son's disdain, then later as the reason he signs up for the impossible mission of bringing the criminal to the train to justice, the loss of his leg is finally invoked to express the incommensurability of disability and restitution. "I was paid the one hundred seventy five dollars and forty two cents not so I would leave the Army, but so they could leave me." Both men in the movie have been abandoned, in short: the soldier by the army which frags him and then deserts him; the criminal by his mother, who abandons him to a useless Bible. There's something going on here about a non-nurturant State and non-nurturing mothers: how both disable, the former physically and the latter morally. But I can't go farther into that question now: I've been writing about comic books, chronic disease management, and power all day, my legs ache after walking to and fro the Writer's Room, and my eyes are closing.
My wise chicken wonders what this has to do with the book I've promised her. It'll come. It'll come.